ZakomplikovAna

04/05/2026

If you are attending the European Medical Writers Association (EMWA) Conference in Barcelona, I would like to know your perspective on a question referred to regulatory science:
📚Where and why does the patient voice belong in regulatory documents?
I will be presenting insights on this topic on Wednesday from 9 AM and would value your feedback.
I`ve also invited EUPATI Fellows (thank you, Stefania, Sheila, and Ghada ✨), featured in the carousel below, to share their views, reflecting the ideas of thinking currently shaping this conversation.
🔔 If you are in Barcelona over the coming days and have a perspective on patient-centred drug development or health innovation, I would love you to share it: in the comments, by direct message, or in person.
Looking forward to meeting you!

29/04/2026

📢 Dear friends, I need your help!
I am currently exploring potential host institutions for a short-term faculty research stay (2 to 10 weeks) within the International Visegrad Fund / Fellowship Programme.

I am a PhD student at the University of Novi Sad, Serbia, and my research focuses on family dynamics in the context of rare disease diagnoses.

For this fellowship, I would like to propose a short-term research stay focused on:
💡 family relationships in the context of rare diseases;
💡 conflict and solidarity within families;
💡 caregiving roles and responsibilities;
💡 Social support mechanisms for families affected by rare diseases.

The aim is to further develop a comparative sociological perspective relevant to both Serbia and the V4 region:
🔸 Slovakia,
🔸Hungary,
🔸Czechia, and/or
🔸Poland.

The host institution should be aligned with the nature of the fellowship.
This may include a university, research institute, science academy, library, archive, or another relevant academic or research body.
I will obtain a formal recommendation from my faculty.
At this stage, I am seeking suggestions and recommendations on institutions, departments, research groups, or individual researchers whose work may be relevant to this topic.
If you are affiliated with an institution that may be interested in hosting a short-term research stay, or if you can recommend a contact person, I would be grateful to hear from you.

🔔 Please feel free to contact me directly by email or DM.

14/04/2026

Join me at the 61st Spring Conference organised by the European Medical Writers Association (EMWA) in Barcelona, from May 5th to 8th, where I will share honest advice for everyone on the following:

Be the mentor to your younger self.
→ Try to find something new to learn, and make yourself open to new opportunities.
→ Build a network of collaborators; that's the best way to grow.
→ Patient advocates are empowered with experience and knowledge, so ask them for help and advice.

Be curious, professional, and empathetic:
Build your business based on knowledge and collaboration with patient advocates!
Not all by yourself, with only ROI on your mind.
---
For the past seven years, I have used every opportunity to improve my knowledge about medical development and health technology assessment, also by founding EmPOWERa Consulting, a boutique agency working with healthcare institutions, life sciences companies, and purpose-driven leaders to turn complex ideas into clear, compelling narratives that drive real-world change.
🔔 If you want to know more, let me know and reach out directly!

13/04/2026

"Breast cancer remains the most common cancer in women worldwide, with outcomes still heavily dependent..." cc OncoDaily

Helen McCrory was known to millions as Polly Gray in Peaky Blinders and Narcissa Malfoy in Harry Potter.
Behind these powerful roles, she was quietly facing a private battle with breast cancer one she chose not to define her publicly.

Her story reflects more than personal resilience. Breast cancer remains the most common cancer in women worldwide, with outcomes still heavily dependent on stage at diagnosis. Early detection saves lives but gaps in awareness and access remain.

Read Full Article: https://oncodaily.com/stories/celebrities/helen-mccrory-breast-cancer-story

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03/04/2026

I will be attending the 13th European Conference on Rare Diseases and Orphan Products ( ) on 3–4 June 2026.

If you are attending, I would be glad to connect with you!
The ECRD is the largest patient-led, rare disease policy-focused event in Europe.
This year, it will take place in Prague and on an interactive virtual platform.
With more than 700 participants expected, the conference offers a strong opportunity to exchange insights, build partnerships, and contribute to shaping future rare disease policy.
🛎 If you are interested in collaboration, I welcome you to reach out to me in advance or meet during the conference.
I would be particularly interested in connecting on initiatives related to my work and through Hrabriša - Lil' Brave One

Registration is available here: https://www.rare-diseases.eu/register/

28/02/2026

Can AI help in diagnosing and treating rare diseases?

An article, "Reimagining care of people living with rare diseases with artificial intelligence", published in " Medicine", draws a few conclusions about the importance of patients' voices in diagnosing and treating rare diseases.

📚 Patients and families frequently experience years of misdiagnoses, fragmented care, and social disruption—a journey often described as the “diagnostic odyssey". Rare diseases, therefore, function both as a stress test for health systems and as a proving ground for digital health infrastructures and emerging artificial intelligence (AI) technologies.

📚 Although it seems like healthcare professionals have information, they are usually on the lonely road; some doctors in primary healthcare institutions spend their professional lives not knowing any patients with ultra-rare diseases. At the same time, analyses of AI in primary care and surveys of clinicians highlight persistent barriers to implementation, including workflow integration, data quality, trust, and accountability.

📚 Many people with rare diseases leave extensive digital signals in electronic health records (EHRs) long before a rare condition is suspected. These signals include repeated, non-specific presentations, unusual symptom constellations, and clusters of abnormal laboratory findings distributed across multiple encounters and care settings. In response, AI-based approaches have been developed to retrospectively and prospectively identify such patterns and flag patients who may warrant further evaluation..

🎐 So, instead of a conclusion, we need to agree that "the patient–clinician–AI triad provides a coherent framework for aligning technological possibilities with the realities of rare disease care. It clarifies where AI can add value—by integrating data and amplifying learning across cases—while underscoring that responsibility, trust, and decision-making must remain shared."

🔔 If you want to read more, click the link and decide whether AI can help with rare diseases: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004966

15/02/2026

Meet Viktor, our little cancer survivor!
This is our story of determination and resilience, a story worth sharing.
Two years after completing treatment for a rare and aggressive cancer diagnosed before his second birthday, Viktor wanted nothing more than to play soccer. ⚽️
We took him for a sports medical examination: a routine step before he could train.
The doctor looked at us with disbelief and asked:
👉 “Why did you bring him?”
He continued:
👉 “Do you know he will never play professionally?”
I answered with a single conviction:
“We came for him to get an examination. We don’t need you to predict his future; we just need your permission for him to train. The rest is up to him and his specialists.”
Fast forward to October 2025, and Viktor not only continues soccer training, but he WON the 400m race at the Novi Sad Marathon 🏃‍♂️🏅 in the category forlower grades of elementary school.
✨ Some call it determination.
✨ Some call it resilience.
✨ I call it belief in possibilities.
We believe in miracles. And miracles do happen when courage meets support, hard work, and hope.
❤️ To every family walking a long health journey — keep believing, keep advocating, and never let anyone set limits on what your child can become.
https://mcrnjanski.edu.rs/index.php/component/content/article/214-na-oktobarskom-novosadskom-maratonu-viktor-pataki-osvojio-je-prvo-mesto?catid=32:aktuelnosti&Itemid=785

На октобарском Новосадском маратону, у трци „Трка ученика од 1. до 4. разреда основне школе (400 м)”, Виктор Патаки, ученик Основне школе „Милош...

10/02/2026

Sa velikim zadovoljstvom delim najavu o mom učešću u Interdisciplinarnom istraživačkom seminaru, gde ću u sredu 25. marta 2026. godine, sa početkom u 18 časova predstaviti temu: "Retka bolest u porodici, socioekonomska dinamika, radna prava i troškovi brige u svakodnevnom životu porodica obolelih od retkih bolesti u Srbiji"
Po cenu da sam "požurila", prijavila sam temu na seminaru Instituta za sociološka istraživanja koji predstavlja prostor za razmenu ideja, teorijskih i metodoloških dilema, kao i za dobijanje konstruktivnih povratnih informacija u podsticajnom interdisciplinarnom okruženju Filozofskog fakulteta u Beogradu.
Značiće mi razmena ideja sa kolegama, sugestije za uzorak, metodologiju i literaturu za nešto što planiram staviti u fokus svojih doktorskih studija.
Interdisciplinarni istraživački seminar se održava u Svečanoj sali 108 Filozofskog fakulteta Univerziteta u Beogradu.
Više detalja možete pronaći u originalnoj objavi Institut za sociološka istraživanja: https://www.facebook.com/institutzasocioloskaistrazivanjaff/posts/pfbid012NSE2VWDvKatPwGKsmrJoeSzokcuA5ew8YDnhwg9wu1ZrXx12s4YRJkSd7t1aN4l
Vidimo se?

26/01/2026

And here is a book recommendation, if you want to know more about the situation of personal brand in Serbia, from a sociological point of view: https://www.amazon.com/dp/B0G39MSB27?ref=cm_sw_r_ffobk_cp_ud_dp_FGWQ39PGFKS3B6E97KDW_1&ref_=cm_sw_r_ffobk_cp_ud_dp_FGWQ39PGFKS3B6E97KDW_1&social_share=cm_sw_r_ffobk_cp_ud_dp_FGWQ39PGFKS3B6E97KDW_1&bestFormat=true&fbclid=IwdGRjcAPklLJjbGNrA-SUrGV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHstj6X4UrvcKEUBKEvrRuGi687OQ3VYTGIx50Lqc6CNVhb-FZPoQ6e7zoH-k_aem_iLZBsjnliYw7jIPYFpFHXg

Here's another weekly book recommendation:
If you work in a world where your credibility is often judged before you ever speak: on LinkedIn, on a website, or in a short bio, then this book is worth your time.
📚 "Personal Branding in the Digital Age: A Sociological Perspective from Serbia" - approaches “personal branding” as more than tactics or visibility hacks.
It examines how identity is constructed online, how “authenticity” is negotiated under social pressure, and why consistency can be both an asset and a constraint when your audience is always present.
What I appreciate most is the lens: it treats personal branding as a social process shaped by norms, expectations, and power dynamics, not just a marketing checklist.
That makes it especially useful for professionals who want to communicate with integrity: researchers, advocates, consultants, founders, and anyone building trust in public spaces.

💡 Click the link and read it completely free on Amazon Kindle Unlimited, or buy your own as a paperback: https://a.co/d/azu6dFn

20/01/2026

✨Women entrepreneurs are expected to grow their businesses without slowing down, while carrying most of the family responsibilities.
📚In Serbia and the wider Balkan region, support is fragmented, short-term, and often limited to capital cities. Structured mentorship, strategic guidance, and family-inclusive learning are still largely inaccessible.
🚀That is why we have planned the Empowered Getaway: Family Edition is a three-day retreat designed for women entrepreneurs and their families.
While women participate in practical business workshops, their children take part in age-appropriate, nature-based activities. Learning, rest, and family time happen together, not in competition.
• How to Support This Event?
We are running a crowdfunding campaign to secure the venue, confirm speakers, and deliver high-quality programming.
Backers supporting this event receive early access, workshop perks, family activity packages, and public acknowledgment.
🔔If you are interested, support the project here: https://project.liftwomen.com/p/6945b1c8a5d8d360a22d724b
Or, you can contact the Organizer for more information, via email: [email protected] of phone: +381 60 322 3098

11/01/2026

There are too many stories that start with “I made it in xy business.”
Not enough that admit “I struggled while building my positioning online.”

Last year, I:
✅Walked away from a stable professional path
✅Gave up predictable income
✅Let go of opportunities that once came with travel, conferences, and established networks
✨That is the reality of being a solopreneur.

🏆You carry everything—strategy, delivery, doubt, responsibility.
🏆You think about work while spending time with your family.
🏆You overanalyze decisions because there is no safety net.

It’s not black and white.
And it’s rarely glamorous.
But consistency matters.
Showing up matters.
And choosing not to quit on yourself matters most. 🚀
Not everything is perfect—but steady work allows you to protect what truly matters and keep moving forward.
My success is a possibility: to work according to my value system and achieve goals beyond everything I ever thought of, on my terms.
🔔What is your biggest achievement in business and life in 2025?