Innothyrogen Horizon Europe Project

29/08/2026

📊 Beyond the numbers are the voices and experiences of patients.

Over the past weeks, our partner, the Forum of Patients of Serbia, has shared findings from a survey involving 228 patients, providing valuable insight into their experiences, challenges and needs throughout the thyroid care journey.

The findings point to several important priorities: better access to healthcare, clearer information on prevention, greater patient involvement, and more personalised approaches to treatment.

A sincere thank you to everyone who participated and contributed their experience. Patient perspectives are essential in shaping healthcare that better responds to their needs. 💙

Tokom prethodnih nedelja delili smo sa vama rezultate ankete „Put pacijenta sa bolestima štitaste žlezde – iskustva, izazovi i potrebe“, sprovedene u okviru projekta InnoThyroGen.

Iza svake brojke nalazi se stvarno iskustvo pacijenta: iskustvo čekanja na pregled, traganja za informacijama, i iskustvo života sa dijagnozom.

Zato možda najvažniji rezultat ankete nije nijedan procenat, već poruka da pacijenti žele zdravstveni sistem koji ih bolje čuje, bolje informiše i pruža podršku tokom celog p**a – od dijagnoze do lečenja.

Hvala svim učesnicima ankete koji su svojim iskustvom doprineli da glas pacijenata bude deo razgovora o budućnosti zdravstvene zaštite.

28/08/2026

🎉 The 2nd InnoThyroGen Summer School is now FULL!

📍 Belgrade, Serbia
📅 September 8–12, 2026

Thank you to everyone who applied! We’re excited to welcome our participants for five days of intensive learning, hands-on training, collaboration, and knowledge exchange. 🧬💻✨

This year’s Summer School will focus on key approaches in genomic data analysis, including Linux & R, GWAS, quality control, association analysis, population structure, polygenic risk scores (PRS), and post-GWAS analyses.

🛑 Registrations are now closed.

👀 Didn’t get a spot this time?
Don’t worry - one more InnoThyroGen Summer School is planned! Stay tuned for updates on upcoming dates, programs, and application details.

📡 Follow us on social media and visit our website for the latest updates:
🔗 www.innothyrogen.eu

26/08/2026

🧬✨ The agenda is here!

We’re excited to share the programme for the 2nd InnoThyroGen Summer School of Bioinformatics, taking place in Belgrade from September 8–12, 2026! 🇷🇸

Five days of lectures, hands-on computer workshops and discussions will take participants from Linux and R programming 💻 through GWAS, quality control, association analysis and polygenic risk scores, all the way to advanced genomics approaches such as machine learning and Mendelian randomisation. 🧬

👉 Check out the full agenda and discover what each day of the Summer School will bring.

We look forward to welcoming you to Belgrade for a week of learning, collaboration and discovery!

18/08/2026

🧬 Understanding risk before disease develops.

New survey findings from our partner, the Forum of Patients of Serbia, show that 68% of respondents would be interested in genetic testing to assess their risk of developing thyroid disease.

This strong interest highlights the growing importance of predictive and personalised approaches to healthcare - and the need to ensure that patients are well informed about what genetic information can, and cannot, tell us.

Through InnoThyroGen, we are exploring how genomics and predictive approaches can contribute to a better understanding of thyroid disease and support more personalised healthcare.

Šta ako bismo mogli da saznamo više o svom zdravstvenom riziku pre nego što se bolest razvije ili napreduje?

U anketi sprovedenoj u okviru projekta InnoThyroGen, čak 68% ispitanika navelo je da bi bilo zainteresovano za genetičko testiranje procene rizika za bolesti štitaste žlezde.

Ovaj rezultat ne govori samo o interesovanju za novu tehnologiju. Govori o potrebi pacijenata da bolje razumeju svoje zdravlje, mogućnosti prevencije i opcije koje imaju na raspolaganju.

Kako medicina napreduje, važno je da zajedno sa njom raste i informisanost pacijenata. Razumevanje stavova i potreba pacijenata važan je korak ka razvoju pristupa koji su dostupniji, razumljiviji i usmereniji na njihove potrebe.

07/08/2026

🧬 Towards more personalised thyroid care.

New survey findings from our partner, the Forum of Patients of Serbia, show that 77.2% of respondents believe additional testing can help determine the optimal therapy, while the same percentage consider treatment tailored to their individual characteristics very important.

These findings underline the importance of advancing more precise and personalised approaches to thyroid care - one of the key areas at the heart of the InnoThyroGen project.

Lečenje nije isto za svakog pacijenta.

Čak 77,2% ispitanika smatra da dodatna testiranja mogu pomoći u određivanju optimalne terapije, dok isti procenat navodi da im je veoma važno da lečenje bude prilagođeno njihovim individualnim karakteristikama.

Jedna od tema projekta Innothyrogen Horizon Europe Project jeste razvoj pristupa koji mogu doprineti preciznijem i individualizovanijem lečenju. Rezultati ankete pokazuju da pacijenti prepoznaju značaj takvih pristupa i žele da budu aktivni učesnici u donošenju odluka o svom lečenju.

04/08/2026

2nd InnoThyroGen Summer School of Bioinformatics 🧬☀️

📍 Institute of Molecular Genetics and Genetic Engineering (IMGGE), University of Belgrade, Serbia
📅 September 8–12, 2026

We are happy to invite you to the 2nd InnoThyroGen Summer School of Bioinformatics, a hands-on, interdisciplinary workshop focused on statistical genetics, genome-wide association studies (GWAS), and polygenic risk scores (PRS). Participants will also gain practical experience in R programming, genetic epidemiology, and advanced bioinformatics approaches.

✅ Participation is free of charge
✅ No prior coding or comp**ational experience required
✅ 25–30 young researchers will be selected

📅 Registration deadline: September 1, 2026
🔗 More info & registration: https://www.innothyrogen.eu/news/2nd-innothyrogen-summer-school-of-bioinformatics/

Join us in Belgrade for a dynamic week of learning, collaboration, and discovery! 🌍🧬☀️

27/07/2026

📢 Access to reliable health information is essential for prevention and early diagnosis.

Our partner, the Forum of Patients of Serbia, shared new survey findings showing that 69.7% of respondents believe they do not receive timely and accurate information on thyroid disease prevention through the healthcare system.

These insights help us better understand patients' needs and support the development of more patient-centred healthcare. 💙

Kvalitetne informacije mogu pomoći ranijem prepoznavanju simptoma i pravovremenom obraćanju lekaru.

Ipak, čak 69,7% ispitanika smatra da kroz zdravstveni sistem ne dobija pravovremene i tačne informacije o prevenciji bolesti štitaste žlezde.

Kroz projekat InnoThyroGen istražujemo kako unaprediti dijagnostiku, lečenje i podršku osobama sa bolestima štitaste žlezde. Zato je važno razumeti kako pacijenti procenjuju dostupnost informacija i preventivnih sadržaja.

Rezultati ankete ukazuju da postoji potreba za snažnijom edukacijom i dostupnijim informacijama koje mogu pomoći pacijentima da bolje razumeju svoje zdravlje.

27/07/2026

📩 The 3rd InnoThyroGen Newsletter is here!

Our latest newsletter is now available, bringing together the newest updates from the InnoThyroGen project – from research progress and patient engagement to educational resources, recent events, and upcoming opportunities. This edition also highlights our growing biobank, Mendelian randomisation, Work Package 3 activities, and the upcoming 2nd InnoThyroGen Summer School.

📬 Want to stay up to date? Subscribe to our newsletter and receive future editions directly in your inbox.

📚 Missed one of our previous newsletters? You can find all editions, together with other dissemination materials, in our Knowledge Hub:

🔗 https://www.innothyrogen.eu/knowledge-hub/dissemination-materials/

18/07/2026

Every patient deserves timely access to specialist care. 💙

Our partner, Forum pacijenata Srbije, has shared new findings from their patient survey, highlighting that 66.7% of respondents experienced difficulties accessing specialist care.

Together, we continue working towards more patient-centred healthcare.

Za mnoge pacijente prvi izazov ne počinje dijagnozom, već dolaskom do pregleda. Čak 66,7% ispitanika navelo je da im je bilo umereno ili veoma teško da dođu do specijaliste.

Ovaj nalaz deo je ankete „Put pacijenta sa bolestima štitaste žlezde – iskustva, izazovi i potrebe“, koju je Forum pacijenata Srbije sproveo u okviru projekta InnoThyroGen sa ciljem boljeg razumevanja iskustava i potreba pacijenata.

Pravovremen pristup zdravstvenoj zaštiti važan je za postavljanje dijagnoze, praćenje bolesti i donošenje odluka o lečenju. Zato dostupnost specijalističkih pregleda ostaje jedno od ključnih pitanja koje pacijenti prepoznaju kao posebno važno.

06/07/2026

💙 Every patient voice matters.

A huge thank you to the 228 participants from 46 cities across Serbia who shared their experiences through the InnoThyroGen patient survey.

Your insights are helping us better understand the patient journey and will contribute to improving future patient-centred approaches in thyroid healthcare.

Ukupno 228 ljudi, I podeljenih 228 iskustava. To je broj pojedinačnih glasova koji su pomogli da bolje razumemo put pacijenta sa bolestima štitaste žlezde.

U okviru Innothyrogen Horizon Europe Project, Forum pacijenata Srbije sproveo je anketu „Put pacijenta sa bolestima štitaste žlezde – iskustva, izazovi i potrebe“, kako bi prikupio iskustva, mišljenja i potrebe osoba koje žive sa ovim oboljenjima.

U anketi je učestvovalo 228 pacijenata iz 46 gradova i mesta širom Srbije, što nam je omogućilo da sagledamo izazove sa kojima se suočavaju tokom dijagnostike, lečenja i pristupa zdravstvenoj zaštiti.

Hvala svima koji su izdvojili vreme da podele svoje iskustvo. Tokom leta podelićemo sa vama najvažnije nalaze ankete i poruke koje pacijenti šalju zdravstvenom sistemu.