26/04/2021
This is a really good article from JAMA on managing cachexia in people with chronic disease. Well worth a read.
Approach to Management of Anorexia and/or Cachexia in Persons With Advanced Illness
Assess
Appetite and global functioning; review medications in detail
Eating habits and any difficulties with eating and involve a registered dietitian if available and indicated
Symptoms that may affect appetite and ability to eat and/or drink (ie, nutrition impact symptoms), taste and smell changes, mucositis, oral ulcers, nausea, constipation, pain, and depression
Address
Stop medications that may decrease appetite, if possible
Recognize that medications to treat 1 symptom may worsen others (eg, opioids may be associated with constipation, corticosteroids with mood changes, and β-blockers with changes in taste)
Specialty palliative care is helpful for complex symptom management
Recognize that certain nonpharmacologic interventions may have better risk and benefit profiles for treating symptoms than pharmacologic interventions5
Before suggesting frequent calorie-dense meals to optimize caloric intake, focus on listening
First, Listen
Ask about patient and caregiver concerns and needs related to eating, such as:
“What are your concerns about eating?”
“What is bothering you?”
“Tell me more.”
Then, Counsel (even a few minutes can help)
Acknowledge that across cultures, eating and food are emotional issues that are intimately connected to the expression of love, care, hope, and control
Inform that cachexia is a wasting disorder, driven by and reflecting the underlying disease process, not simply a lack of caloric intake
Avoid jargon, eg, use “eating” instead of “nutrition”
Do not medicalize nutrition and explain that extra calories generally cannot reverse the disease process and can be burdensome
Assure that lack of eating and weight loss are neither the fault of the patient nor the caregiver
Do not recommend routine enteral or parenteral tube-feeding, which may be associated with net harm, especially in patients with limited prognoses
Discuss how the caregivers may support patients if they have a desire to eat, such as offering favorite foods and having social meals that are for pleasure (ie, taste, not caloric intake)
Clarify that caregivers should not pressure or force patients to eat because these could worsen appetite and strain the patient-caregiver relationship
Suggest alternate methods of caring for and/or helping patients who do not want to eat, eg, holding hands, providing lip balm, massage, companionship, and so on
Patients and caregivers should both be counseled, separately if they are experiencing conflict and/or poor communication