11/24/2025
โจ ๐๐ผ๐๐ฏ๐น๐ฒ ๐ฌ๐ผ๐๐ฟ ๐๐บ๐ฝ๐ฎ๐ฐ๐: ๐ฆ๐๐ฝ๐ฝ๐ผ๐ฟ๐๐ถ๐ป๐ด ๐ฃ๐ฎ๐ฟ๐ฒ๐ป๐โ๐๐ฒ๐ฑ ๐๐ฑ๐๐ผ๐ฐ๐ฎ๐ฐ๐ ๐ณ๐ผ๐ฟ ๐ ๐ฒ๐ฑ๐ถ๐ฐ๐ฎ๐น๐น๐ ๐๐ฟ๐ฎ๐ด๐ถ๐น๐ฒ ๐๐ต๐ถ๐น๐ฑ๐ฟ๐ฒ๐ป ๐ถ๐ป ๐ก๐ โจ
Ten years ago, my phone rangโand a group of parents taught me where real expertise lives.
They didn't call to vent. They called because they were organizing. They wanted to talk policy, strategy, and how to navigate a maze that most people never see. Within minutes, it was clear: these mothers and advocates knew more about the NC IDD system than I did. Of course they did. They had been living it, fighting through it, and becoming experts on behalf of their children.
Today, that same lived expertise powers North Carolina Advocates for Medically Fragile Children (Fragile Kids NC). This parent-led organization is working every day to make sure medically fragile children get the services, stability, and dignity they deserve.
๐๐ ๐ฝ๐ฎ๐ฟ๐ ๐ผ๐ณ ๐ผ๐๐ฟ ๐ฎ๐ฌ๐ฎ๐ฑ ๐๐ฟ๐ถ๐ฑ๐ด๐ฒ๐ ๐๐ผ ๐๐บ๐ฝ๐ฎ๐ฐ๐ ๐๐ป๐ป๐๐ฎ๐น ๐ ๐ฎ๐๐ฐ๐ต, ๐๐ผ๐บ๐บ๐๐ป๐ถ๐๐ ๐๐ฟ๐ถ๐ฑ๐ด๐ฒ๐ ๐๐ผ๐๐ป๐ฑ๐ฎ๐๐ถ๐ผ๐ป ๐๐ถ๐น๐น ๐บ๐ฎ๐๐ฐ๐ต ๐ฎ๐น๐น ๐ฑ๐ผ๐ป๐ฎ๐๐ถ๐ผ๐ป๐ ๐๐ผ ๐ก๐ผ๐ฟ๐๐ต ๐๐ฎ๐ฟ๐ผ๐น๐ถ๐ป๐ฎ ๐๐ฑ๐๐ผ๐ฐ๐ฎ๐๐ฒ๐ ๐ณ๐ผ๐ฟ ๐ ๐ฒ๐ฑ๐ถ๐ฐ๐ฎ๐น๐น๐ ๐๐ฟ๐ฎ๐ด๐ถ๐น๐ฒ ๐๐ต๐ถ๐น๐ฑ๐ฟ๐ฒ๐ป ๐ฑ๐ผ๐น๐น๐ฎ๐ฟ ๐ณ๐ผ๐ฟ ๐ฑ๐ผ๐น๐น๐ฎ๐ฟ, ๐๐ฝ ๐๐ผ $๐ฑ,๐ฌ๐ฌ๐ฌ.
If you care about making systems work better for the families who depend on them most, I encourage you to give today:
๐ https://www.zeffy.com/en-US/fundraising/continue-our-life-saving-impact
Your gift fuels parent-led advocacy, stronger policy, and a more just future for medically fragile children in North Carolina.
You are not required to give an additional amount to Zeffy - just change the drop down to "other" and enter "0."Advocates for Medically Fragile Kids NC is a non-profit that advocates for the rights and needs of medically fragile children and their families in North Carolina. First established in 201...