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Adventure's with Alex

Name: Adventure's with Alex
Address: 1001 Epic Blvd, Orlando, FL, 32819, US
Telephone: 0877989853

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Adventure's with Alex

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Alex is a 15 year old boy from Cork who had sdr surgery in 2015. Thank you to everyone that helped Alex reach the next chapter of his Journey.

He loves 3d printing and keeping followers updated on his journey through life with Cerebral Palsy. This page was originally set-up to fundrais to get Alex to st.louis ,USA to have an operation called SDR (Selective Dorsal Rhizotomy)
We have reached our fundraising target and are no longer actively fundraising. The page will now be used to share with you all The next chapters of Alex's SDR story and raise awareness of this life changing operations. Of all the surgical and medical procedures currently performed on patients with cerebral palsy (CP), selective dorsal rhizotomy (SDR) has undergone more thorough scientific scrutiny than any other (including orthopedic surgery). Accumulated evidence and our own experience indicate that SDR is an excellent option for selected patients with spastic cerebral palsy. We believe parents and patients should inquire about SDR as a part of the management of CP before the patient undergoes orthopedic surgery. The Selective Dorsal Rhizotomy Procedure involves sectioning (cutting) of some of the sensory nerve fibers that come from the muscles and enter the spinal cord. This means alexs pain will be taken away and he will be able to walk. please ask us if you would like to know more or you can look up all information about the operation through the link below

http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr

Alex will be travelling to the USA in July to Have his SDR operation thanks to the kindness and compassion of so many people. People gave there precious time and money to Alex to make this little boys wish come true.

10/07/2026

It’s hard when one twin celebrates his Junior Cert results while the other, who has cerebral palsy and attends a special school, doesn’t get the same opportunity. They are twins, growing up side by side, but facing different experiences. It’s a reminder that every child deserves to feel included, valued and celebrated in their own way.

Don't ever change Alex we are super proud of you always 💙

10/06/2026

It was my birthday yesterday, I turned 16 years old.

Last week my new bigger & more advanced printer arrived.

I can now print pieces in 1 go (this saves my mom giving out about gluing small pieces on)

I am nearly finished with the 2nd lot of Nativity Sets and will then be starting on other Christmas pieces.

If there is something you would like 3d printed send a message and we can take a look.
Have a good week 💙

09/29/2026

We are delighted to share some good news about Alex.

Alex has been selected as 1 of 12 children to take part in the ombudsman for children youth advisory panel.
Next year the uncrpd want to know if disabled children in ireland are getting their rights so the oco have to find out if children are getting their rights and then tell the u ited nations.

Over the next couple of months Alex will travel to Dublin for many meetings and tell them what its like to be a disabled child living in ireland and what changes need to be made.

We are so proud of Alex for doing this and trying to help advocate for himself and his many friends.

Alex fights hard everyday living with Cerebral palsy, epilepsy and learning disabilities but he is an amazing boy and no doubt will do an amazing job over the coming months 👏

09/22/2026

I finished off & packed up the first batch of Nativity Sets today so I will now be starting the 2nd batch. My Mom will get in touch with those who are getting this batch. Thank you for supporting my 3d Printing Business
Love Alex 💙

09/15/2026

Alex's Layer Lab & his mom With Love from Laurane are doing a collaboration.

3d printed Nativity Set
Comes in beautiful Box to store year after year.

€75 per set €20 deposit required

Includes
Mary, Joseph & Baby Jesus
3 Wise Men
Angel with Tealight
Donkey, Sheep & Camel
Base Board 7mm and engraved with a beautiful quote or family name.

Order via message here

08/16/2026

Alex is hoping to do a Christmas market this year selling his 3d printed bits and he would love to know what kind of things you guys would like to see ?

08/07/2026

We are heading home this evening on Aer Lingus back to Cork. We are so so proud of this young man. Alex has worked so hard since getting Sdr he works tirelessly every day of every week to keep himself mobile. This agilik will give Alex the ability to walk more comfortably and for more distance. Pa & I will always do our utmost to find the best for him because he deserves it and more 💙💪

08/04/2026

All aboard another flight to London 💙
An early start but Alex is still smiling 😊
Excellent service as always with Aer Lingus

Very excited young man getting his Agilik Eskoskeleton fitted today The London Orthotic Consultancy

07/06/2026

Alex trying out Dez's new step mill in the gym. Just because its summer holidays from school doesnt mean this guy gets a break. We are blessed to have Dez in Alex's life with all the advice & support he gives along with fantastic strength & conditioning for Alex 💙

Next week are off to a casting appointment next in Enable Ireland to get Casts to wear at night time while he is in bed to get a good stretch of his muscles.

As usual Alex never complains and just gets on with it. He is also SUPER excited to start camp 2moro 💙

07/04/2026

Take That here we come 💙

Address

1001 Epic Blvd
Orlando, FL
32819

Telephone

0877989853

Website

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