28/08/2026
Life’s not as bad as you think. Sending nothing but love and prayers for you little man ❤️
Today marks 102 days since Talen’s bone marrow transplant.
This should have been an exciting milestone. We should have been talking about his stoma reversal, getting him ready to go back to school and slowly getting our normal life back.
Instead, we are still taking things hour by hour, day by day, hurdle after hurdle.
I am honestly so heartbroken.
Talen is still in PICU. He is now off the ventilator and extubated, but he is on CPAP and still needs help to keep his left lung inflated. His chest drain became blocked, the fluid re-collected and his lung collapsed again.
We have now also been told that the fluid around his lungs has come back showing around 80% Burkitt cells.
That news was absolutely devastating.
We are still holding onto hope that the CAR-T cells can fight this. We have to. Talen has come so far and fought through so much, but he is exhausted. His little body desperately needs a break.
At the same time, we are trying to be there for our other boys and somehow help them process seeing their brother this unwell. Watching them go through this too is another kind of heartbreak.
100 days after transplant was meant to feel like a finish line.
Instead, we are still fighting.
Please keep Talen in your prayers and keep hoping with us that these CAR-T cells can do what we desperately need them to do. 🤍🙏🏻
