04/12/2023
I'm super excited to announce that our second edition of sickle cell stories from warriors, caregivers, advocates and healthcare professionals is now published.
This book contains 25 stories from these stakeholders who narrate raw stories from the heart.
Like the first edition, this book has people's stories from different parts of the world.
You will read stories of hope, resilience, frustration, and sadness as we strive to bring these stories to the world.
Although being the most common disorder, what this project taught us was that even people living with sickle cell disease do not get adequate treatment in most parts of the world.
Sickle cell warriors are still stigmatised in different parts of the world. That sickle cell warriors would rather hide from peers or employers that they are affected, fearing the treatment they may receive.
Remember to get a paperwork copy for easy referencing☺️. If you would like to contact any of the book contributors, please get in touch with me on [email protected].
See the ebook on this link: https://a.co/d/52udlM1
It's deemed the world's most common genetic disorder, but why is sickle cell disease still not fully understood in communities where it's very prevalent. The Real-Life Stories of Sickle Cell - A Global Collaboration presents stories from different parts of the world to enlighten us about the effe...