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I'm super excited to announce that our second edition of sickle cell stories from warriors, caregivers, advocates and he...
04/12/2023

I'm super excited to announce that our second edition of sickle cell stories from warriors, caregivers, advocates and healthcare professionals is now published.

This book contains 25 stories from these stakeholders who narrate raw stories from the heart.

Like the first edition, this book has people's stories from different parts of the world.

You will read stories of hope, resilience, frustration, and sadness as we strive to bring these stories to the world.

Although being the most common disorder, what this project taught us was that even people living with sickle cell disease do not get adequate treatment in most parts of the world.

Sickle cell warriors are still stigmatised in different parts of the world. That sickle cell warriors would rather hide from peers or employers that they are affected, fearing the treatment they may receive.

Remember to get a paperwork copy for easy referencing☺️. If you would like to contact any of the book contributors, please get in touch with me on [email protected].

See the ebook on this link: https://a.co/d/52udlM1



It's deemed the world's most common genetic disorder, but why is sickle cell disease still not fully understood in communities where it's very prevalent. The Real-Life Stories of Sickle Cell - A Global Collaboration presents stories from different parts of the world to enlighten us about the effe...

📢I was privileged to contribute to the Master Class on what it means to do Advocacy work.📢If you are someone working tir...
01/06/2023

📢I was privileged to contribute to the Master Class on what it means to do Advocacy work.

📢If you are someone working tirelessly to make a difference in your community see this website for insightful real-life information from different advocates including Agnes MN

https://advocacymasterclass.com/biographies/agnes-nsofwa/




Agnes Nsofwa is a registered nurse, sickle cell advocate, author, book publisher, and advocacy consultant.

26/04/2023

Only 3 sleeps away. Join Agnes MN Vice Chairperson of the Conference organising committee by purchasing tickets via
https://lnkd.in/gaqSwF_9






26/04/2023

🌟Next month, I'm back to my favourite city Sydney, attending two conferences and this speaking engagement.

🌟I will be discussing how our lives changed forever when our daughter was diagnosed with sickle cell disease.

🌟In what I have titled Everything Happens for a Reason, the time we found out about our daughter's diagnosis seemed like the end of the world.

🌟It's through this experience that I ended up finding my purpose in life.

🌟The journey was rough but through the divine power, our daughter was cured.

🌟If you will be in Sydney on 16th May, join me, Monica Rosenfeld Storyteller and other fabulous speakers where we will be sharing our stories from the heart.

🌟Get your tickets via this link: https://tinyurl.com/4fychyn5

🌟Looking forward to seeing you there.





I'm super excited to be representing Australian Sickle Cell Advocacy as the supporting organisation for this event to be...
21/03/2023

I'm super excited to be representing Australian Sickle Cell Advocacy as the supporting organisation for this event to be held on 29th April 2023 at Victoria Hotel Melbourne.

These are our fabulous Vips, Speakers with special dignitaries to be posted soon.

Join us by purchasing tickets here: https://lnkd.in/gaqSwF_9

Can't wait to party with you afterwards.





✅️Over the years I have had the pleasure of helping organisations start their advocacy journey. ✅️My first project was a...
17/03/2023

✅️Over the years I have had the pleasure of helping organisations start their advocacy journey.

✅️My first project was advocating for our family when our daughter was diagnosed with sickle cell disease.

✅️Through this life experience, I founded Australian Sickle Cell Advocacy. Now in our 5th year, the experience has been the best.

✅️Although every life experience has challenges, my work with ASCA has been fulfilling despite these challenges.

✅️My other project was the creation of a sickle cell movement The Amplify Sickle Cell Voices International Inc - ASVI.

✅️An initiative created by sickle cell warriors, caregivers and advocates, this movement is about creating global connections.

✅️Although still in its effancy stages, I'm so proud of what we have achieved so far.

✅️My other project is The Zambian Network for Sickle Cell Amplified Voices and Advocacy. This project was an idea given to me by one of my greatest mentors.

✅️Also in It's early years, we have so much work to do to change the sickle cell narratives in Zambia.

✅️Let me now introduce you to my latest project. The Zambians in Australia and New Zealand is an initiative to bring Zambians in these countries share professional and family ideas. We do this by hosting annual conferences.

✅️The proceeds from these conferences will be used to adopt a project in Zambia.

✅️Our first conference will be on 29th April 2023. Come and join us and be part of the 50 people only joining us face-to-face.

✅️I have created the Olana's World brand after the book So I Have Sickle Cell Disease. Get the book today. Link in comments.

✅️Let me also tell you about another initiative in form of a book publishing venture.

✅️I managed to bring 23 people from over 20 countries to write different stories about the impact of sickle cell disease.

✅️The book is called The Many Faces and Lives of Sickle Cell - A Global Collaboration.

✅️Find the link in comments for you to get a copy.

✅️With these projects and more that I will update soon, tell me why you have not contacted me yet to help you advance your advocacy journey?

✅️Contact me today on how you can unleash your potential. Email me Agnes MN on [email protected]

Always remember:



18/02/2023
31/12/2022

✨️Wishing you all a Happy and Healthy New Year. Please Stay Safe and Focused.

🎁Hello Friend 🎁Wishing you a Merry Christmas. 🎁May this Season bring Joy and Happiness. 🎁Please stay safe. ❤️ Agnes MN
25/12/2022

🎁Hello Friend

🎁Wishing you a Merry Christmas.

🎁May this Season bring Joy and Happiness.

🎁Please stay safe.

❤️ Agnes MN

28/08/2022

Today we introduce our Keynote speakers. Meet Dr Kylie Mason .

Dr Mason one of Australia's Sickle Cell Specialist, Consultant Haematologist at The Royal Melbourne Hospital Peter MacCallum Cancer Centre Senior Research Fellow, Sydney Medical School, NHMRC fellow, Clinician Researcher, The University of Melbourne.

Dr Mason will be our first presenter discussing an Overview of Sickle Cell Disease.

The Conference is less than two weeks away. We have limited numbers of attendees at the venue so get your tickets today.

The conference will be held at Wesley Conference Centre at 220 Pitt Street in Sydney Australia

Register via this link
https://lnkd.in/eCFsDkzQ

Or via this if you are a Caregiver or Warrior.

https://lnkd.in/gGYHQgC8

Free registration available here:
https://lnkd.in/gEtFNak6.

T&Cs apply















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