UCB Biopharma

Name: UCB Biopharma
Address: Allée de la recherche 60, Brussels, 1070, BE
Telephone: +3225599999

We’re , a global biopharmaceutical company. We believe everyone deserves to live their best life.
💙 Inspired by patients 🔬 Driven by science

08/09/2026

“Alex was a normal, happy, healthy little boy… or so we thought.”

Every family’s journey to a rare disease diagnosis is different, but many are shaped by uncertainty and the search for answers after noticing that something is wrong. For many families living with TK2d, an ultra-rare genetic mitochondrial disease, this diagnostic journey is all too familiar.

Hear from Vicky and Ruy on their experience that led them to their son’s diagnosis of TK2d. It changed their lives.

Learn more about and the importance of early diagnosis at
🔗 https://www.ucb.com/solutions/diseases/tk2d.

05/09/2026

Introducing .

Created with artists living with epilepsy, this exhibition brings personal experiences to life through art. Through their work, the artists share powerful perspectives on the emotions, everyday realities, and hidden experiences that shape life with epilepsy.

01/09/2026

Living with can bring significant challenges to those impacted, affecting their physical ability day-to-day, their independence and their mental wellbeing.

To understand the day-to-day challenges those living with TK2d face and those who care for them, we conducted an online survey-based Assessment of TK2d Patient Perspectives study.

Thank you to all of those who took part in the study – your lived experiences are incredibly valuable, and we hope the results will help share care in the future.

Learn more about the study and the results at 👉 https://journals.sagepub.com/doi/full/10.1177/26330040261469197

24/08/2026

We're counting down to the 16th European Epilepsy Congress in Athens, where we'll unveil .

Through art and storytelling, this global initiative explores epilepsy in a new way — inviting people to pause, reflect, and connect with experiences they may never have considered before.

Stay tuned!

18/08/2026

Every experience of epilepsy is unique.

Some moments are visible. Many are not. They are carried in silence, felt in uncertainty, and lived in ways that are often difficult to explain in words.

This September, we're exploring those lived experiences through a series of artworks created by people living with epilepsy, offering a powerful new perspective on what epilepsy can feel like.
Stay tuned. 💙

02/07/2026

To raise awareness of MG and inspire others to self-advocate, Alisa shares her experiences living with MG, including the development of her symptoms, her misdiagnoses, and her unfortunate myasthenic crisis.

Read the full story featured in this UCB sponsored RareRevolution article https://rarerevolutionmagazine.com/beyond-the-surface-the-invisible-impact-of-myasthenia-gravis/

23/06/2026

For children and adults living with and their caregivers, the condition is about far more than just seizures.

It’s about round-the-clock care, navigating behavioral challenges, intellectual disability, sleep disturbances, and managing ongoing medical appointments and therapies.

Behind every diagnosis is a person, a family, and a story that matters - that’s why it’s ever important to listen, share and learn from them during Dravet Syndrome Awareness Day.

18/06/2026

When Candace was just 19, her symptoms began in a way she didn’t expect: first drooping eyelids, then double vision, followed by a rapid progression of challenges such as chewing, swallowing, speaking and pronouncing words.

Since then, myasthenia gravis ( ) has touched every aspect of her life. Even everyday moments can become unexpectedly hard, like difficulties walking or not being able to grip a knife when preparing food.

Together, we can raise awareness of MG. Learn more about Candace’s journey living with MG: https://www.ucb.com/solutions/diseases/myasthenia-gravis/faces-of-MG

17/06/2026

CDKL5 deficiency disorder (CDD) is an ultra-rare developmental and epileptic encephalopathy (DEE), with impacts that extend far beyond seizures alone.

For individuals and families, they can face complex care needs and constant coordination - with caregivers at the heart of everyday support.

That could mean coordinating appointments one day and advocating for support the next, all while navigating the daily demands of the condition.

International CDKL5 Awareness Day is another moment to look beyond the clinical descriptions of the condition and remember what daily life looks like for people living with this severe disease.

16/06/2026

At just 21, Alisa began experiencing symptoms she couldn’t explain – a weakened voice, slurred speech, and difficulty smiling and swallowing. What followed was a long and difficult journey to diagnosis, with her symptoms repeatedly dismissed for over a year.

Now, Alisa shares her story to help others understand the invisible impact of myasthenia gravis (MG). Through resilience and support, she continues to rebuild her confidence and raise awareness of MG, so others don’t feel alone.

This , let’s make the invisible visible.

Find out more about her story and the impact MG had on her life https://www.ucb.com/solutions/diseases/myasthenia-gravis/faces-of-MG

Adresse

Allée De La Recherche 60
Brussels
1070

Téléphone

+3225599999

Site Web

https://www.ucb.com/

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