Evidence-based Practice Research Centre

11/03/2016

Here are some pictures of the team with their posters at 11th Palliative Care Conference 2016 . Copies of the posters can be found at www.edgehill.ac.uk/eprc/research/posters

09/02/2016

Professor Barbara Jack, the director of the EPRC, and colleagues evaluation of the Queenscourt Hospice at Home Service, launched in 2009, is now available to view online at https://www.edgehill.ac.uk/eprc/research/eprc-external-evaluations-and-reports.

EPRC Reports The EPRC have undertaken a variety of local, national and international evaluations for a variety of stakeholders. These have included, for example, NHS England, THET (Tropic Health E…

19/01/2016

Congratulations to all involved in the EPRC's recent poster success at the International Palliative Care Network ‘e’ Conference (IPCNC). Projects led by members of the EPRC team were awarded the third prize with another receiving an honorable mention. https://www.edgehill.ac.uk/eprc/2016/01/19/eprc-posters-success-at-ipcnc/

A poster from a project led by Dr Kate Knighting and involving members of the EPRC team has won third prize at the International Palliative Care Network ‘e’ Conference (IPCNC). The post…

19/12/2014

The Carers' Alert Thermometer has been accessed in 8 countries since being launched in September 2014!

There are new articles available on development of the Caters' Alert Thermometer available at - edgehill.ac.uk/carers

15/12/2014

Professor Barbara Jack, EPRC Director, and colleagues in the EPRC team have had an article published in Innov-age, a magasine promoting excellence in health and eldercare. The article illustrates the development of the Carers Alert Thermometer (CAT).

Furthermore, Prof Jack's expert perspective comes under the 'spotlight' in this issue.

The publication can be viewed online here:

http://www.edwardhealthcare.org/research/innov-age-magazine/innov-age-pain-issue/

12/12/2014

Dr Mary O’Brien, Reader in Health Research, recently presented findings from a study exploring the bereavement needs of carers of people with Motor Neurone Disease (MND) at the 12th Annual Allied Professionals’ Forum in Brussels, Belgium, hosted by the International Alliance of ALS/MND Associations.

Conference information here:http://www.mndassociation.org/Resources/MNDA/Conference%20and%20events/Documents/apf-abstract-booklet-2014-borders.pdf

29/08/2014

The is raising phenomenal amounts of money for MND research. However, MND research is more than just bench science, it should also seek the views of people diagnosed with the illness and their carers to fully understand their needs.

See below for links to a number of MND papers published by the EPRC team:

Experiences of dying, death and bereavement in motor neurone disease: A qualitative study - http://ow.ly/ARdHl

Family carer perspectives of acute hospital care following a diagnosis of motor neuron disease: a qualitative secondary analysis - http://ow.ly/ARofF

The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study - http://ow.ly/ARovg

Objectives: to explore the experiences of people with Motor Neurone Disease (MND), current and bereaved carers in the final stages of the disease and bereavement period.

18/07/2014

There are 3 days of celebrations taking place in September for the 21st Birthday of Hospice Africa UK, founded by Dr Anne Merriman. Please see below poster for more information about the event.

https://www.edgehill.ac.uk/eprc/files/2014/07/HAUK_Poster2014.pdf

30/06/2014

Prof Bernie Carter delivered a visiting lecture at Edge Hill University on 19th June 2014. The lecture focussed on a new web-resource that she developed in collaboration with Dr Lucy Bray (Reader in Children, Young People & Families, EPRC). The resource is called 'My Child is in Pain'.

To view the lecture see below link:

http://ow.ly/yAA5M

My Child is in Pain: insights and outcomes from collaborating with parents and professionals to develop a web-based pain resource.

26/03/2014

25/03/2014

Prof Barbara Jack, Dr Kate Knighting, Dr Mary O'Brien, Phil Crompton & Andrew Kirk attended The 10th Palliative Care Congress (PCC) in Harrogate on 12th-14th March 2014. To view photographs from the 2-day conference please visit the Palliative Care Congress page - https://www.facebook.com/pages/Palliative-Care-Congress/229618397098975

Please visit the official PCC website for the programme of events spanning over the 2-days: http://www.pccongress.org.uk/index.php?pageid=1

The Palliative Care Congress is a UK registered charity, which hosts a biennial conference for a multi-disciplinary audience of medical professionals working in the field of palliative care.

24/03/2014

Rogers S. N., Hazeldine, P., O’Brien, K., Lowe, D (2014) How often do head and neck cancer patients raise concerns related to intimacy and sexuality in routine follow-up clinics? Eur Arch Otorhinolaryngol. DOI 10.1007/s00405-014-2971-0 [Published online 14th March 2014]

Link to article: http://ow.ly/uTn4a

Abstract:

Intimacy and sexuality problems are underreported in head and neck cancer patients. The aim of this study was to collate the various prompts available in a routine follow-up clinic through the use of an intimacy screening question and Patient’s Concerns Inventory (PCI), and to identify how often these problems were raised by patients and what possible actions took place as a consequence. 177 patients completed the intimacy screening question, PCI and UW-QOLv.4 at follow-up clinics, from October 2008 to January 2011. Case note review identified if intimacy was mentioned in clinic letters and if referral for support was made. On the intimacy screening question, 15 % (26) reported problems of considerable/some concern (24) or selected intimacy/sexuality on the PCI (2). The PCI identified that 9 of the 24 reporting the worst problems wanted the topic discussed in clinic, and clinic letters suggested that 5 of these discussed the issue in clinic with 4 being referred on, 3 to a clinical psychologist and 1 to a clinical nurse specialist. Intimacy problems are underreported in clinic reviews. It is a difficult subject to discuss. It will remain a potential unmet need unless attempts are made to advance the opportunities for patient screening, information leaflets, staff training on how to talk about such sensitive issues and referral for counselling.

Intimacy and sexuality problems are underreported in head and neck cancer patients. The aim of this study was to collate the various prompts available in a routine follow-up clinic through the use of an intimacy screening question and Patient’s Concerns Inventory (PCI), and to identify how often the...