06/04/2026
I have been driving around with my mum in the boot… and it has brought me great comfort
That’s probably not the usual way to open a post, but here we are.
I have been very quiet over the past little while as I have been processing the loss of my mum, the last member of my immediate family. It has been a season of reflection, of slowing down, and of really thinking about what matters at the end of life.
My mum loved a good drive. It was a lifelong passion of hers.
There was something about being on the road, going somewhere (or nowhere in particular), that brought her joy.
So, having her ashes in the boot as I head out and about has, in a strange and beautiful way, brought me comfort and more than a few smiles. It feels like she is still coming along for the ride.
And in that space, I have been thinking a lot about legacy.
In my world, we often talk about bequests in terms of money or assets. But legacy is so much more than that.
In our family, my father and two of my four siblings died from Huntington's disease. Their brains were donated to the Auckland Brain Bank to support vital research aimed at understanding and ultimately eliminating this disease.
As the mother without the disease, and as the sibling with the closest genetic match who does not carry the huntingtin gene, my mum and I will become part of the “control” group.
Even in death, her contribution continues to matter.
This is a legacy that is deeply meaningful to us. And yet, I am continually surprised by how few people know about the world-class research happening right here in Aotearoa every single day.
I am incredibly proud of the bequest my mum made. And I fully intend to follow in her footsteps when my time comes.
Because, let’s be honest…it is exciting that Someone finally wants me for my brain!
This season has reminded me that legacy is not just about what we leave behind financially. It is about what we choose to give, who we choose to help, and the impact that continues long after we are gone.
So, as I slowly step back into this space and reconnect with this amazing community, I will be sharing more about legacy, about giving, and about the many ways we can all make a difference.
For now, I will keep taking Mum out for a drive. ❤️