Alexion Pharmaceuticals

Name: Alexion Pharmaceuticals
Address: 121 Seaport Boulevard, Boston, MA, 02210, US
Telephone: +14752302596

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Alexion Pharmaceuticals

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Alexion, AstraZeneca Rare Disease is focused on pioneering new possibilities for the rare disease community. Community Guidelines: https://bit.ly/39x9gqy

We are driven by a mission to change what it means to live with a rare disease.

10/30/2026

On , and every day, we stand with the (HPP) community around the world.

Every person living with HPP, along with their families and care partners, demonstrates extraordinary strength, resilience and determination. But too often, these stories go untold.

In Rare Connections in HPP, Antje, Lisa and Mario share their experiences living with this complex that can present in many forms. Their stories remind us that HPP isn’t invisible, even when it goes unseen.

Through greater awareness we can change the experience for others navigating this journey.

Understand HPP in a new way:

10/26/2026

Kim, a mother and teacher, was 39 years old when routine bloodwork showed something wasn't right. She spent several months searching for answers, ultimately learning that she has a rare disease called light chain (AL) .

Looking back, she realised she had been experiencing subtle changes in her health for years. She was short of breath, and her workouts were getting harder. But after consulting her doctor and receiving normal results from additional tests, she attributed these signs to getting older.

Today, Kim hopes her experience encourages others to pay attention when something feels off and not to give up until what’s causing those symptoms has a name. Learn more about Kim’s story below.

10/26/2026

This , we are shining a light on the profound impact amyloidosis can have on people living with this devastating disease and their families - including long-term outcomes, quality of life and the everyday moments that matter most.

Continued collaboration, education and innovation are critical to driving meaningful progress for people around the world who are affected by this group of complex rare diseases.

10/24/2026

While atypical haemolytic uraemic syndrome ( ) is often associated with kidney damage, its effects can extend beyond the kidneys, impacting multiple organs and contributing to serious, potentially life-threatening complications.

10/23/2026

Finishing school. Starting a career. Building a future.

An individual's late teens to forties are often marked by several of life's biggest milestones. For people living with immunoglobulin A nephropathy ( ), this is the same period when diagnosis typically occurs.

Some people living with IgAN may face kidney failure within 10 years of diagnosis, often putting their plans and future aspirations on hold just as they're beginning to take shape.

Learn more about who is at risk of progression to kidney failure ⬇️

10/22/2026

Did you know that up to 67% of people living with neuromyelitis optica spectrum disorder ( ) experience cognitive dysfunction? As a result, attention, memory and executive function can be impacted, making everyday tasks, work and personal relationships even more difficult to navigate.

Raising awareness of these often-overlooked symptoms is essential to understanding the full impact of this rare neurological disease on patients and their caregivers.

10/22/2026

Meaningful progress in rare disease often starts with new insights into disease biology.

In immunoglobulin A nephropathy ( ), ongoing research on the role of the complement system in driving kidney inflammation and damage is advancing our understanding of this disease.

We are committed to deepening our collective scientific knowledge of this serious and rare kidney disease.

10/20/2026

Imagine knowing something wasn't right, but no one could tell you why.

That was Lisa's reality for years. From serious dental issues in childhood to muscle pain that made everyday activities, even just lifting her arms, a struggle, she knew her symptoms weren't normal. But finding answers wasn't easy.

Lisa kept asking questions, trusted her instincts and continued to stand up for herself. After decades of searching, she finally had an answer: (HPP), a disease with a wide range of symptoms often overlooked due to how rare it is.

Today, she's sharing her story in hopes that others facing unanswered symptoms feel seen, heard and less alone.

Watch Rare Connections in HPP to hear how Lisa and others are navigating life with this :

10/19/2026

Living with generalised (gMG) is more than just managing muscle weakness.

The unpredictability and variability of symptoms may mean having to delay plans, miss moments and often put life on pause.

Because symptoms of this rare autoimmune disorder can shift unexpectedly, people living with gMG might not know how they'll feel tomorrow or from one moment to the next.

Watch Deanna's story to learn how she manages.

10/15/2026

"Giving up is not an option."

Those words became a motto for Antje, who has lived with overwhelming fatigue and severe muscle and bone pain for decades before learning the cause: (HPP), a with a broad range of symptoms that can make it difficult to diagnose.

In Rare Connections in HPP, Antje reflects on how this disease has shaped her childhood and continued to impact her life today and how her deep inner strength together with the unwavering support of loved ones has kept her moving forward.

Hear her story and others in Rare Connections in HPP:

Address

121 Seaport Boulevard
Boston, MA
02210

Telephone

+14752302596

Website

http://alexion.com/, https://alexion.com/Documents/Alexion-Community-Guidelines, https://www.linkedin.com/company/alexio

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