09/25/2026
With everything I keep seeing in the news about HCBS waivers, I want to give you some insight into why this is so personal and important to me.
I know people see me out living my life and probably wonder, “Who helps her every day?”
My family comes first, of course, but the reality is that it takes a lot more than one or two people.
I am a person who needs full-time care. That means I need help every day with many of the things that typical people can do independently or with very little assistance.
It’s not because I don’t WANT to do these things myself. I have Cerebral Palsy, and my body is simply made a little differently.
I’m very tight and stiff because of my CP. I have a baclofen pump that delivers medication around the clock to help with that, but medication doesn’t magically make my need for assistance disappear.
I need help eating certain foods. Give me something runny and there’s a pretty good chance I’ll be wearing some of it! 😂 And I LOVE food, so somebody better be there to help me eat it!
I can tell you what I want. I can help with some things. But I cannot physically do everything for myself.
And I’ll be real: that can be incredibly frustrating as a young adult.
I WANT independence.
That is why when I hear about cuts—or even potential cuts—to programs and services that help people with disabilities live in their communities, my first thought is: Please, NO.
I need my staff. I need my parents and family. I need the people who help me live my life every single day.
But needing help does NOT mean I don’t want choices.
I want to live in my own home rather than being forced into a group home or nursing home because I cannot get the support I need.
I want to decide what I eat.
I want to decide when I go somewhere.
I want to decide what I do with my day.
I want the same thing everyone else wants: the ability to make choices about my own life.
That is why HCBS and disability services aren't just numbers on a budget or words in the news to me. They affect real people, real families, and our ability to live in our communities.
I hope Georgia continues to listen to people with disabilities, our families, caregivers, and staff. And I hope our federal leaders remember how important these supports are to the people who depend on them.
Because disability can become part of anyone’s life.
One day, you or someone you love may need help too.
For me, this isn't just a political conversation.
It’s my life. It’s my independence. It’s my choice. ♿❤️