10/13/2026
Living with Alexander disease (AxD) an ultra-rare, progressive and often fatal neurological disorder, can bring difficult days, but for David and his mother, Melissa, those days don’t define their story.
From David’s “mayor” status at school to the many inside jokes he and Melissa share at home, laughter helps them navigate changing care needs and the daily realities of AxD.
For Melissa, these moments are a reminder of the close bond they’ve built over the years.
Watch David and Melissa’s story to hear what keeps them moving forward: https://bit.ly/4y6YZKn