Ionis Pharmaceuticals

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Ionis Pharmaceuticals Delivering innovative medicines to patients where no others have proven effective or existed.

10/13/2026

Living with Alexander disease (AxD) an ultra-rare, progressive and often fatal neurological disorder, can bring difficult days, but for David and his mother, Melissa, those days don’t define their story.

From David’s “mayor” status at school to the many inside jokes he and Melissa share at home, laughter helps them navigate changing care needs and the daily realities of AxD.

For Melissa, these moments are a reminder of the close bond they’ve built over the years.

Watch David and Melissa’s story to hear what keeps them moving forward: https://bit.ly/4y6YZKn

It was a pleasure to host and sponsor OUTbio ireland’s Autumn Social at our Dublin office, bringing together life scienc...
10/08/2026

It was a pleasure to host and sponsor OUTbio ireland’s Autumn Social at our Dublin office, bringing together life sciences professionals to share perspectives and explore the theme of inclusive innovation.

OUTbio™ empowers + professionals in the life sciences and related industries through networking, education, advocacy, professional development and peer support.

Creating opportunities to build community, share experiences and foster a sense of belonging is what our LGBTQIA+ ERG is all about. We were proud to support this event, increase visibility and spend time with so many wonderful peers.

10/07/2026

There’s not one “look” to someone living with severe hypertriglyceridemia, or sHTG.

Very high triglycerides, 500 mg/dL or above, are not always caused by lifestyle. They can also be linked to other health conditions, certain medications or genetics.

Learn more about the misunderstood realities of living with sHTG: https://bit.ly/46Nh0RT

10/01/2026

At Ionis, we support our colleagues’ personal and professional development through a variety of resources.

Our voluntary Mentorship Program enrolls every six months, thoughtfully pairing Ions who want to grow with mentors eager to share their knowledge and help their colleagues reach their goals.

Pairs are encouraged to meet on a regular basis and are provided resources to make the most of their time together, whether they’re developing a specific skill, navigating a transition, learning about a different aspect of our industry or organization or just establishing a new connection. 150 Ions participated in our last cohort.

Visit ionis.com/careers to learn more about how we invest in our people.

September is   Awareness Month. Swipe to learn about this group of rare, progressive genetic disorders and find more inf...
09/25/2026

September is Awareness Month. Swipe to learn about this group of rare, progressive genetic disorders and find more information at https://bit.ly/4yfmIrV.

09/15/2026

Meet David and his mother, Melissa.

David was diagnosed with Alexander disease (AxD) at age 9 after years of tests, specialist visits and uncertainty. Now 18, he and Melissa share an honest look at life with an ultra-rare, progressive neurological disorder, from managing daily needs to the realities of caregiving – and the moments of joy they find together.

Watch David and Melissa’s story to learn more about their experience living with AxD: https://bit.ly/4y6YZKn

09/09/2026

You can’t tell if someone has severe hypertriglyceridemia ( ) just by looking at them.

sHTG means very high triglycerides, 500 mg/dL or higher, and it can affect people of different backgrounds, body types, ages and lifestyles.

Hear real stories of people living with sHTG and helping challenge common misconceptions: https://bit.ly/46Nh0RT

09/04/2026

Today, the U.S. FDA approved our medicine for Alexander disease ( ) marking the start of a new chapter for people and families living with this ultra-rare disease. Hear more from our CEO, Brett P. Monia, PhD.

09/02/2026

The beach is nature’s playground, and we had a blast transforming it into an inclusive venue for people living with neurological conditions, and their families and caregivers, at our 11th annual Surf Away+.

With the help of Ionis volunteers and partners, we facilitated adaptive and accessible activities to engage and delight attendees, including music and movement, sensory activations from tidepool tanks to STEM learning, workshops that included art, mindfulness and improv, adaptive surfing, pickleball, volleyball and more.

Surf Away+ is a day for the whole family, and this year we celebrated siblings and the important role they play alongside parents and caregivers.

We want to extend a huge thank-you to all participants, family members, partners and volunteers who made this a day of joy and support for such a deserving community.

Partners: Adapt, Challenged Athletes Foundation, Waves4all

Resources: Angelman Syndrome Foundation, Rare Mamas, Raregivers, Pawsitive Teams, Inc., Resounding Joy Inc.

08/18/2026

Ionis Every Step™ provides personal support and tools to help people living with serious diseases as they get started on an Ionis medication.

Our dedicated Patient Education Managers work to understand each person’s unique journey so they can personalize care, including disease education, insurance navigation and community resources.

Learn more at everystep.ionis.com.

Address

2855 Gazelle Court
Carlsbad, CA
92010

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