09/10/2026
đź’š PBC IS IN THE ROOM TONIGHT! đź“Ł
Tonight, PBC Awareness, NFP is proud to have our Founder & President, L. Marie Asad, representing the Primary Biliary Cholangitis (PBC) community during the Alagille Syndrome Alliance“Advocacy in Action” Speaker Series.
During , opportunities like this matter. PBC may be a rare liver disease, but our voices should never be rare in conversations about healthcare, research, policy, access, and patient advocacy.
L. Marie will join fellow rare disease advocates Danae Bartke, Cher Bork, Seth Rotberg, and Roberta Smith, with Erin Murphy serving as moderator, to share experiences and discuss what it means to turn advocacy into action.
📅 TONIGHT — Thursday, September 10
⏰ 6:00–7:30 PM CT | 7:00–8:30 PM ET
đź’» Virtual
We’re grateful to the Alagille Syndrome Alliance for bringing different rare disease communities together because, while our diagnoses may be different, many of our challenges are shared.
đź’š When PBC patients are represented, PBC patients are heard.
Drop a đź’š in the comments to wish L. Marie well tonight and show that the is behind her!
