Rooted Beginnings, LLC

Rooted Beginnings, LLC Rooted Beginnings: Cultivating Joy

06/01/2026

One of the things that makes my advocacy work different is that I don't see children as paperwork.

When families come to me because their school district is failing their child, I absolutely help with the paperwork. I review evaluations. I look over IEPs and 504 Plans. I help families write letters. I attend meetings. I identify gaps. I explain rights. I help parents understand what the data actually says and whether the recommendations being made align with their child's needs.

But I also ask another question: Are the recommendations even legal?

Because more often than not, I find that families have been told things that simply are not true.
They've been told services can't be provided because there are no providers. They've been told a child has to fail before receiving support. They've been told accommodations aren't available. They've been told a placement decision has already been made. They've been told their child can be removed from class, sent home, or denied access to educational opportunities in ways that violate their rights.

Many parents assume that if a recommendation is coming from a school district, it must be legal. Unfortunately, that is not always the case.

A significant part of my work involves helping families understand when their child's rights under IDEA, Section 504, New York State regulations, or other protections may be being violated—often in ways they never realized.

But that's only one piece of the puzzle.

What often gets overlooked in traditional advocacy is that these situations are incredibly stressful for everyone involved—especially the child.

Many of the children I work with are already carrying the weight of school trauma, anxiety, burnout, chronic stress, exclusion, misunderstanding, or repeated experiences of being told they are the problem.

Their caregivers are often exhausted, overwhelmed, and trying to navigate systems that feel impossible to understand.

Because of my background as a special education teacher, DIRFloortime® practitioner, autistic adult, and parent, I take a much more holistic approach.

I don't just work with the adults.

I work with the child, too.

Sometimes that looks like 1:1 sessions.

Sometimes it looks like participating in one of our small groups.

Sometimes it means creating a space where a child can simply exhale and be themselves while the adults work through the advocacy process.

The information I gather through direct interaction with a child often provides valuable context that no evaluation report can capture. I get to know who they are beyond the data points, scores, behavior charts, and educational labels.
I also have the freedom to be independent.

I am not employed by a school district. I am not funded by the Department of Education. I am not navigating district budgets, staffing shortages, political pressures, or organizational interests.

My responsibility is to the child and family sitting across from me.

Advocacy is about more than compliance and paperwork.

It is about understanding the whole child, supporting the whole family, recognizing when systems are causing harm, and helping families make informed decisions about what comes next.

That is the work I do at Rooted Beginnings.

Communication should be a basic human right!
05/31/2026

Communication should be a basic human right!

Drop the kids off and enjoy a summer evening in Clarence Hollow! 🌿While the children are cozy inside enjoying a movie, c...
05/31/2026

Drop the kids off and enjoy a summer evening in Clarence Hollow! 🌿
While the children are cozy inside enjoying a movie, crafts, swings, play, and connection with friends, caregivers can take a short walk to the free Concert on the Lawn at the Asa Ransom House, enjoy dinner at one of the wonderful local restaurants, explore the village, or simply take a little time for themselves.
Children are welcome to come in pajamas, bring a favorite stuffy, and pack a dinner. As always, we'll be offering a low-demand, child-centered environment where kids can participate in the evening in whatever way feels right for them.
Space is limited, so be sure to reserve your spot! 💚

Connection is often dismissed as soft, secondary, or something that happens after the "real work" is done.But connection...
05/31/2026

Connection is often dismissed as soft, secondary, or something that happens after the "real work" is done.
But connection is the work.
It is through connection that we build trust, safety, communication, resilience, and a sense of belonging. Long before children learn from us, they learn whether they are safe with us.
Relationships are not a reward for compliance. They are the foundation from which growth becomes possible.

05/31/2026

One of the hardest things about being autistic is that once I see a pattern, I can't unsee it, especially when it comes to social justice issues.

Over time, I've realized that one of the hardest parts of advocacy is being willing to say out loud what many people sense but are afraid to acknowledge.

I think we need to get better at holding more than one truth at the same time.

I believe our current systems often traumatize children and families. I believe disabled children are harmed every day in educational, therapeutic, medical, and behavioral settings, often by people who genuinely care about them. I believe disabled people are routinely denied autonomy, communication, dignity, self-determination, and meaningful choice in the name of helping them. And I also believe that many of the professionals working within these systems are kind, compassionate people doing the best they can within structures they did not create.

Both things can be true.

But kindness alone is not enough.

One of the conclusions I have come to after years of working in education, special education, early intervention, advocacy, and disability spaces is that the problem is not simply that these systems are broken. Increasingly, I believe they are producing outcomes that are entirely predictable given the values they were built upon.

When a system prioritizes compliance over autonomy, behavior over communication, productivity over humanity, and institutional needs over individual needs, the outcomes we see should not surprise us. They are predictable consequences of the values embedded within the system itself.

This is part of why I believe we need to have more honest conversations about ABA. I think it is fair to ask why ABA is routinely referred to as a therapy when, at its core, it is a behavior intervention. I also think it is fair to ask why one approach has received such enormous amounts of funding, research dollars, insurance coverage, professional influence, and institutional support while developmental, relational, communication-centered approaches remain difficult or impossible for many families to access.

At the same time, I understand exactly why many families pursue ABA services.

In many communities, there are no meaningful alternatives. There may be no DIRFloortime® providers, no neurodiversity-affirming supports, no parent coaching, no developmental approaches, and no communication-centered interventions available. Even when alternatives do exist, they are often inaccessible financially because insurance does not cover them.

Families are frequently forced to choose from the options that exist, not the options they wish existed.

That reality did not emerge by accident.

Entire systems of funding, insurance reimbursement, research priorities, professional training programs, and public policy have been built around a single model.

And this is where I find myself asking a question that no one seems particularly interested in answering.

As a teacher—before I was an advocate, before I was a practitioner, before I started Rooted Beginnings—I was taught that all children learn differently.

We know this. We teach this. We train educators on this. We build entire educational frameworks around this understanding.
We recognize that children have different strengths, different interests, different communication styles, different sensory profiles, different ways of processing information, and different pathways to learning. We acknowledge this as a fundamental truth in education.

Yet somehow, when it comes to autistic children, we are often told that there is one intervention that should serve as the primary pathway to support.

If children learn differently, communicate differently, experience the world differently, and develop differently, why would we expect one intervention to meet the needs of every child?

More importantly, why have we built an entire system that functions as though it does?

That question is not an attack on individual practitioners. It is a question about systems. It is a question about funding. It is a question about power. It is a question about who gets to decide what counts as support and which approaches receive legitimacy, resources, insurance coverage, research dollars, and institutional backing.

Because when families are repeatedly told there is only one evidence-based option, I don't just wonder about the intervention itself. I wonder about all of the approaches, perspectives, and supports that never received the same opportunity to be funded, studied, promoted, reimbursed, or made accessible in the first place.

And I wonder what true choice would look like if families actually had access to a wide range of supports instead of being funneled toward a single industry.

When one approach receives the overwhelming majority of resources for decades, it becomes increasingly difficult for anything else to grow. Families are then told they have a choice, but a choice between one funded option and a dozen inaccessible ones is not meaningful choice at all.

Perhaps the hardest truth to hold is that harmful systems often depend on good people.

They depend on kind people, compassionate people, and people who genuinely want to help.

In fact, those people are often what allow harmful systems to continue functioning because their presence makes the system appear more humane than it actually is.

I know this because I lived it.

I spent years working inside systems where I watched professionals be pressured into practices that did not align with their values. I watched people compromise their integrity because they needed a paycheck, health insurance, supervision hours, job security, or simply because they could not imagine another way. I watched people recognize that something was wrong while feeling powerless to challenge it because the cost of speaking up felt too high.

And I understand that. We are all navigating systems that make survival difficult. Capitalism is unforgiving. Most people are simply trying to make it through the day.

But I also believe there comes a point where we have to decide what we are willing to participate in, what we are willing to normalize, and what we are willing to tolerate.

For me, there came a point where I could no longer reconcile what I was witnessing with my own values. I could no longer participate in systems that asked me to prioritize compliance over connection, behavior over communication, and institutional convenience over human dignity.

Leaving was not easy. It was not financially smart. It was not comfortable. It came with significant personal and professional costs.

But my integrity required it.

This is also one of the reasons I often find myself isolated from agencies, professional circles, organizations, and even some online communities.

Once you begin questioning the foundation itself rather than individual actors, people become uncomfortable. It is much easier to believe the problem is a few bad teachers, a few bad therapists, a few bad administrators, or a few bad districts.

It is much harder to consider the possibility that the outcomes we see are not the result of a handful of individuals failing, but the predictable result of systems functioning exactly as they were designed to function.

When you raise those questions, people often hear personal criticism. They hear blame. They hear judgment.

But my goal has never been to assign individual blame.

My goal has always been to ask larger questions about power, money, access, whose voices are centered, whose voices are ignored, and what happens when maintaining a system becomes more important than protecting the people within it.

The truth is that speaking this way has come with consequences. I have lost professional relationships. I have lost opportunities. I have lost access to spaces where it would have been easier to stay quiet.

But I reached a point where my commitment to disabled children, disabled adults, and the truth as I understand it became more important than belonging to spaces that required my silence.

Children are living with the consequences of these systems right now. Families are living with the consequences of these systems right now. Disabled adults are living with the consequences of these systems right now.

They deserve more than good intentions.

They deserve honesty. They deserve dignity. They deserve meaningful choice. They deserve autonomy. And they deserve people who are willing to imagine something beyond the systems we inherited.

Holding more than one truth means acknowledging that many people inside these systems genuinely care. It also means recognizing that caring, by itself, does not create change.

Change requires us to look honestly at the structures around us, even when doing so is uncomfortable.

For me, that discomfort is worth it because the people most impacted by these systems do not have the luxury of looking away.

05/31/2026

This is a good read.

The Gold Standard Fallacy of ABA: A reference guide for therapists, educators, and parents

by Julia Roberts MS CCC-SLP

Edited to add more information.

In this book, Julia reviews the education and training of register behavior technicians (RBT); Board certified behavior analyst (BCBA) and Board certified assistant behavior analyst (BCaBA) and compares to the educational requirements and training of speech-language pathologists (SLP).

Interestingly despite many BCBAs and agencies noting to be experts in autism, there is no required coursework on autism. In fact Julia notes “clinical or theoretical expertise in autism is not required for BCBA”. Also course work on human development, language development, motor or social emotional development while these professionals provide assessment and treatment in this area.

Next Julia reviews many different research studies sharing key points and concerns including studies showing no definitive differences with outcomes, concerning methodologies and claims without the evidence to support. Also, Julia discusses the conflicts of interest (COI) that are not stated in research studies emphasizing biases which makes outcomes highly questionable. Concerns with COI not being discussed in the vast majority of studies is now being more readily highlighted, particularly by autistic people.

The research in naturalistic developmental behavior interventions was pooled together in a meta-analysis with questionable results.

All research citations are shared so a reader can take the initiative and read for themselves.

One study noted, Jones et al. 2017, was a study on the placebo effect in the absence of treatment with children with autism. Parents reported improvement with unusual behaviors and social behaviors despite no actual intervention being provided highlighting the problem of placebo effect in autism treatment.

Another Eckes et al. 2023, showed medium effects with intellectual functioning and adaptive behavior, but there were no changes with language abilities, autism symptom severity and parental stress. Also questionable methodologies were noted.

Julia also reviewed the PBIS studies. positive behavior intervention support is a common Tier 1 intervention in many if not all public schools for all students including gen ed and special education. Questionable results are noted here.

I also appreciate how Julia notes how the researchers didn’t consider the negative outcome experienced by the participants.

Julia provides detailed information in ethical concerns and how ABA violates bodily autonomy with each topic having a full chapter.

Research outlining the need for measuring outcomes of trauma related to ABA. If you need a reminder scroll down in my page to the documentary The Fish Don’t Care When It Rains documentary or This Is Not About Me documentary.

Julia also discusses the problems with re-branding ABA as the new and the old when the science of operant conditioning and behavior modification is the same. Lastly there is a big dive into the financial windfall of the Autism Industrial Complex and private equity. Private equity firms continue to invest in ABA hoping to make quick, high returns and this can result in cost-cutting and may compromise autistic people’s welfare.


EDITED:

A clarification: this post is not arguing that speech-language therapy, or any other service provided to autistic people, is free from criticism or concerns. I have published on this topic and have discussed them on this page before.

In this book there is no comparison if one service is better than others. It’s a compilation of peer-reviewed published empirical research identifying problems with the science and the service and more.

For those inclined to respond with “but what about…?” in defense, my question is: Have you read this book? Have you reviewed the research woven throughout it? It addresses a wide range of concerns that challenge the idea of any intervention being treated as an unquestioned “gold standard,” including ABA.

Perhaps the bigger takeaway is this: there is no true gold-standard treatment for autism or co-occurring needs. All approaches should remain open to scrutiny, evidence, ethical discussion, and the voices of those most impacted.

This book is available in Amazon and Barnes and Noble. I’ll add the link in comments

(Image cover of the book: white rectangle with written title of book with six vertical stripes of red orange yellow green blue and purple that look painted)

I'm excited to share that in May I started facilitating a peer support group through PDA North America for parents and c...
05/30/2026

I'm excited to share that in May I started facilitating a peer support group through PDA North America for parents and caregivers of children with a PDA (Pathological Demand Avoidance/Pervasive Drive for Autonomy) profile.

This is a free, ongoing, low-demand support group for families of PDA children of all ages. We'll meet virtually, with quarterly in-person gatherings as well. Our first in-person gathering will take place in August, and I'm really looking forward to creating opportunities for families to connect both online and in person.

One of the things I hear most often from parents of PDA children is how isolating the experience can be.

Many families spend years trying strategies that don't seem to fit their child. They find themselves constantly explaining PDA to friends, family members, educators, therapists, and even other parents. They are often carrying an enormous amount of stress while trying to support a child whose needs don't always fit neatly into traditional parenting, educational, or therapeutic approaches.

This group is intended to be a space where you don't have to explain everything from the beginning.

A space where parents can share experiences, ask questions, exchange ideas, celebrate successes, and talk honestly about the challenges.

A space rooted in compassion, curiosity, and connection rather than judgment.

We'll explore relational and developmental approaches, talk about what life actually looks like with PDA, and support one another as we navigate this journey together.

As many of you know, my perspective comes from both lived experience and professional experience. I have spent a great deal of time learning about and living alongside the complexities of neurodivergence.

What I know for certain is that none of us are meant to do this alone.

Community matters.
Connection matters.
Being understood matters.

If this sounds like something that would be helpful for your family, I'd love to have you join us.

Registration is available here:
📋 https://docs.google.com/forms/d/e/1FAIpQLSeY2vDOMh8QW1E-HVzJ-xu2hSaId5XNJ_QQPGDj6SNd2G2Bvw/viewform
Please feel free to share with anyone who may benefit. 💚

Rooted Together: PDA Support meets the second Sunday of each month virtually on Google Meet, with an in person option quarterly. PST: 7:30-8:30 AM MST: 8:30-9:30 AM CST: 9:30-10:30 AM EST: 10:30-11:30 AM About Our Group: A low-demand, parent-focused support group for families of children with PDA of...

05/30/2026

Why don't parents know their rights?

It's a question I've been thinking about a lot lately, because every single week I talk to families who have no idea what their rights are under special education law.

They don't know what FAPE is.

They don't know what Prior Written Notice is.

They don't know what predetermination is.

They don't know they can disagree with recommendations.

They don't know they can request evaluations.

They don't know what procedural safeguards actually mean.

They don't know what compensatory services are.

They don't know what options exist when districts fail to provide mandated services.

And before anyone jumps to "parents need to educate themselves," let me stop you right there.

I am a New York State Certified Special Education Teacher. who worked in special education systems for years. I have participated in countless CSE meetings. I was charged with contributing to the development of IEPs and their goals.

I am also the parent of a child with an IEP.
And I didn't know many of these things either.

Not because I wasn't paying attention. Not because I didn't care. Not because I wasn't involved.

I didn't know because the information wasn't being shared in ways that were meaningful, accessible, or actionable.

That's what keeps bothering me.

We have entire organizations that receive funding specifically to educate and support families around disability rights and special education. Yet somehow I continue to receive phone calls, emails, and messages from parents who feel completely lost.

Parents who never got a call back.
Parents who were told there wasn't capacity.
Parents who couldn't find someone to attend a meeting.
Parents who were handed a website, a brochure, or a phone number and left to figure it out on their own.
Parents who don't even know what questions to ask because nobody has ever taught them.

I need families to hear me:

MANY OF THE ORGANIZATIONS TASKED WITH HELPING FAMILIES UNDERSTAND AND DEFEND THEIR EDUCATIONAL RIGHTS RECEIVE FUNDING FROM THE VERY EDUCATIONAL SYSTEMS FAMILIES MAY NEED TO CHALLENGE.

Please read that again.

And again.

That should give everyone pause.

Not because the people doing the work are bad people.

Not because anyone is intentionally harming families.

But because funding structures matter.

Power matters.

Accountability matters.

And I think it is fair to ask whether organizations can be truly independent when part of their funding comes from the same systems they may need to help families challenge.

That isn't an accusation. It's a question.
A question about how systems are designed.
A question about who holds power.
A question about who organizations are ultimately accountable to.

Because if a parent believes a school district has violated their child's rights, shouldn't they have access to support that is unquestionably independent from that system?

Should disability rights education and advocacy be housed within educational structures at all?

Or should it be funded through agencies whose primary responsibility is protecting the rights, health, and well-being of disabled people?

I don't know the answer.

But I do know this:
If the current system is working, why are so many families still ending up in my inbox?
I am a disabled educator running a small business in Western New York.
I am not a state-funded parent center.
I am not a large nonprofit.
I do not receive funding to educate families about their rights.
Yet every week families find me because they don't know where else to turn.

That should concern all of us.

Because this isn't about one organization. It's about a system that seems to rely on parents somehow becoming experts in special education law while simultaneously providing limited access to the information they need to do that.

The parents I meet are not looking for special treatment. They are trying to understand a system filled with legal language, regulations, timelines, procedures, and unwritten rules. They are trying to get services that have already been determined necessary for their child. They are trying to survive.

Parents should not have to become advocates, attorneys, investigators, and special education experts just to secure an appropriate education for their child.

And they certainly shouldn't have to stumble across a disabled-owned small business on social media to learn rights that are already protected under federal and state law.

The fact that so many parents don't know their rights is not a failure of those parents.

It's a sign that the systems responsible for sharing that information are not reaching families in the ways families actually need.

And if we're serious about systems change, then we have to be willing to talk honestly about that.

Please like, share, and comment to keep me in the algorithm! New programming coming soon!

Thanks for coming to my TedTalk!

05/30/2026

One of the reasons I do the advocacy work I do is because many parents have no idea when their child's rights are being violated.

Not because they aren't paying attention. Not because they don't care. But because schools often use language that makes exclusion sound like support.

Let's talk about informal suspensions. If you are the parent of a child with an IEP, this is something you need to understand.

Most people think a suspension looks like paperwork, an official disciplinary action, and a child being sent home.

Sometimes a child is removed from their education over and over again without anyone ever calling it a suspension.

Instead, it sounds like:
"He needed a sensory break."
"We had them work somewhere quieter."
"She was dysregulated."
"We're helping him regulate."
"We thought it would be best if you picked her up."
"He chose to leave the classroom."
"We're keeping everyone safe."

And sometimes these things are legitimate supports.
Other times they are functioning as something very different.

When a child is repeatedly removed from instruction, repeatedly sent home, repeatedly isolated from peers, repeatedly excluded from activities, or repeatedly placed in another setting instead of receiving their education, they are losing access to their education regardless of what adults choose to call it.

And that matters.

A lot.

Federal and New York State special education laws provide important protections for students with disabilities when disciplinary removals occur. Those protections exist because lawmakers recognized that disability-related needs and behaviors cannot simply be treated the same way as traditional discipline issues.

There are requirements around documentation.
There are due process protections.
There are manifestation determination protections.
There are limits on disciplinary removals.
There are requirements to consider whether behavior is connected to a child's disability.
And there are requirements to provide appropriate supports and services.

When removals happen informally rather than formally, families may not realize that their child is effectively losing access to their education while avoiding some of the scrutiny that accompanies official disciplinary action.

That's why parents need to pay attention.
Because if your child is spending significant amounts of time:
In the hallway...
In the office...
In a sensory room...
In another classroom...
In a behavior room...
At home after you were called to pick them up...
Or anywhere else that is not where they are supposed to be receiving instruction...
You need to start asking questions.

How often is this happening?
How much instruction is my child missing?
Where is this documented?
Who is tracking it?
How is this impacting my child's ability to access their education?

Because here's something I see all the time.
A child struggles.
The child is removed.
The child misses instruction.
The child becomes more disconnected from peers and learning.
The child struggles more.
The child is removed more.

And eventually someone says:
"Maybe this placement isn't appropriate."

But what if the problem isn't the placement?

What if the problem is that the child has spent months being removed from the very supports, instruction, relationships, and opportunities that would have helped them succeed there?

And let's talk about sensory breaks for a moment.

Many children genuinely benefit from movement, sensory input, regulation opportunities, quiet spaces, and flexibility throughout the day.

But a sensory support should increase access to education.
Not replace it.

A sensory break should not become the default response every time a child struggles. It should not become a mechanism for removing a child from the classroom multiple times a day.
And schools should be able to explain exactly why those supports are being used, what data supports them, and how they are helping the child access learning.

A support that consistently removes a child from their education deserves scrutiny because the support is there to INCREASE access to learning.

The law requires schools to provide students with disabilities a Free Appropriate Public Education (FAPE) in the Least Restrictive Environment (LRE).

In plain English, that means schools have an obligation to support children in accessing their education—not simply move them out of the way when things become difficult.

Parents deserve to know this.
Parents deserve to know that not every removal is called a suspension.
Parents deserve to know that repeated removals can have significant educational and legal implications.

Parents deserve to know that "he needed a break" is not the end of the conversation.

And children deserve systems that ask:
"What support does this child need to succeed?"
instead of
"Where can we send this child when they're struggling?"

This is exactly why I do the advocacy work I do.

Because once you understand your rights, it becomes much harder for anyone to convince you that exclusion is the same thing as support.

As always, I am not an attorney and this post should not be considered legal advice. I am sharing information based on my experience as a special educator, advocate, and parent. If you believe your child's rights may have been violated, I encourage you to consult with a qualified special education attorney or advocate familiar with the facts of your specific situation.

Address

10593 Main Street
Clarence, NY
14031

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Thursday 9am - 5pm
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+17163352601

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