06/17/2026
As I prepare to begin my practitioner training through the International Association for Spelling as Communication (I-ASC), I have been trying to learn as much as I can. I have been reading books and blogs, listening to podcasts and interviews, watching documentaries, and seeking out the stories of nonspeaking, minimally speaking, and unreliably speaking individuals and their families.
Recently, while listening to a podcast, I heard a story that I have not been able to stop thinking about.
A couple in their 80s shared that it took 57 years before they were able to truly hear their daughter's thoughts, feelings, ideas, opinions, and experiences through spelling.
Fifty-seven years.
As someone who is almost 57 years old myself, that number landed hard.
I cannot imagine living an entire lifetime without a reliable way to communicate my thoughts, feelings, memories, hopes, fears, opinions, and dreams. I cannot imagine reaching nearly 60 years of age before people had access to what I had been trying to say all along.
That story is both beautiful and heartbreaking.
Beautiful because her parents were finally able to hear their daughter's voice.
Heartbreaking because it took 57 years.
Think about everything that happened during those decades. Birthdays. Holidays. Friendships. Losses. Milestones. Questions never asked. Stories never told. Thoughts never shared. An entire lifetime lived without access to a reliable means of communication.
And that brings me to ethics.
I am repeatedly told that Spelling to Communicate is controversial. I am told it is not considered evidence-based by some professional organizations. I am told it should be approached with skepticism.
But I think we need to ask a different question.
What is more ethical?
Questioning a communication method while continuing to explore, learn, listen, and remain curious?
Or gatekeeping access to communication because it challenges long-held assumptions about speech, intelligence, competence, and disability?
For decades, speech has been treated as the gold standard. If a person could not speak reliably, many assumed they did not understand. If they could not demonstrate knowledge through speech, many assumed the knowledge was not there.
But communication and speech are not the same thing.
Thinking and speaking are not the same thing.
Understanding and speaking are not the same thing.
A person can know exactly what they want to say and still struggle to get their body to cooperate.
As an autistic self-advocate, I also view this through the lens of neurodiversity.
Neurodiversity was created by disabled people. It emerged from disabled voices demanding the right to define their own experiences and participate in decisions that affect their lives. One of its foundational principles is "Nothing About Us Without Us."
To me, that matters.
If disabled people are not helping create the framework, shape the curriculum, teach the training, and lead the conversation, then it is difficult to call something truly neurodiversity-affirming.
Disabled lived experience is expertise.
Nonspeaking people deserve to be heard.
Spellers deserve to be heard.
Autistic people deserve to be heard.
And when nonspeaking individuals repeatedly tell us that they understand more than they have been given credit for, I believe we have an ethical responsibility to listen.
The story of a woman waiting 57 years to communicate should stop all of us in our tracks.
Not because it proves anything.
But because it forces us to ask what might happen when we underestimate people.
How many others are still waiting?
How many thoughts remain trapped behind bodies that do not consistently do what they are asked to do?
How many people have been denied access to a voice because the system could not imagine another possibility?
Communication is a human right.
That belief is one of the reasons I am pursuing training through I-ASC, and I am eager to continue learning from nonspeaking individuals, spellers, families, and practitioners as I begin this journey.
If you are curious about Spelling to Communicate or would like to learn more about the training I am completing, please feel free to reach out. I am always happy to share resources and continue the conversation.