10/15/2026
Everyday moments can look very different for people living with stiff person syndrome (SPS).
Jocelyn, who lives with SPS, shares how muscle stiffness and spasms can change the smallest parts of daily life, like climbing the stairs. Or how temperature can cause her back to lock up, making each day feel unpredictable. These symptoms are often invisible, but they are always real.
Stories like Jocelyn’s underscore the need for new options for a community with no FDA-approved treatments. These stories, and the people behind them, are at the heart of the work we do every day.